Monday, July 13, 2009

Join the Signatories Today!

Please join us in sending a unified message to the Administration and Congress. We know that in past attempts for health reform, the competing special interests of many has stymied the cause. We chose to stand together this time.

Join more than 100 groups listed below by emailing, before noon on July 15, 2009 to sign on the the healthreform principles. We will compile principles, examples, and signatories for delivery to Congress and the Administration during Genetics Day on the Hill on July 16, 2009.

1in9, The Long Island Breast Cancer Action Coalition
5p- Society
AA CSA Foundation
ABQ Associates, Inc
Accord Alliance
Alliance for Aging Research
Alpha-1 Advocacy Alliance
Alpha-1 Association
Alpha-1 Foundation
Alström Syndrome International
Alzheimer's Pakistan
American Association for Cancer Research
American Self-Help Group Clearinghouse
American Sleep Apnea Association
Androgen Insensitivity Syndrome Support Group USA
Angioma Alliance
ARPKD/CHF Alliance
Associação Brasileira dos Portadores da Doença de Gaucher
Associação X Frágil do Brasil
Association of Gastrointestinal Motility Disorders, Inc.
Autism Society of America
Beyond Batten Disease Foundation
Brazilian Genetic Alliance
Breast Cancer Network of Strength
BVVL International
CHARGE Syndrome Foundation
Children's Sickle Cell Foundation,Inc.
Claire Altman Heine Foundation
Coalition for 21st Century Medicine
Coalition for Heritable Disorders in Connective Tissue
Coalition for Pulmonary Fibrosis
Costello Syndrome Family Network
Cutaneous Lymphoma Foundation
Cystinosis Research Network
Detroit Medical Reserve Corps
DNA Direct
Dubowitz Syndrome Family Support
Dystrophic Epidermolysis Bullosa Research Association
Ehlers Danlos National Foundation
Family Voices
Family Voices of California
Fight ALD
Foundation for Ichthyosis & Related Skin Types, Inc.
Foundation for Prader-Willi Research
Foye Myopathy Project
Friedreich's Ataxia Research Alliance
Genetic Alliance
Global Sickle Cell Alliance, Inc
Hannah's Hope for Giant Axonal Neuropathy
Hereditary Angioedema Association
Hereditary Disease Circle
Hereditary Spherocytosis Support Group
HHT Foundation International
Hypertrophic Cardiomyopathy Association
Immune Deficiency Foundation
In Need Of Diagnosis, Inc.
Informed Medical Decisions, Inc.
Institute for Cultural Partnerships
Kids With Heart National Association for Children's Heart Disorders, Inc
Life Sciences and Society Program, University of Michigan
Lung Cancer Circle of Hope
Lymphatic Research Foundation
MHE Research Foundation
MLD Foundation
Muscular Dystrophy Association
Myelin Project
National Eczema Association
National Fabry Disease Foundation
National Foundation for Ectodermal Dysplasias
National Gaucher Foundation
National Marfan Foundation
National PKU Alliance
National Tay-Sachs & Allied Diseases Association, Inc. (NTSAD)
Nature Genetics
NBIA Disorders Association
Neighborhood Interactive Cultural Exchange
NOMID Alliance
Northern Nevada Genetic Counseling
Pachyonychia Congenita Project
Pacientes de SIDA pro Politica Sana
Parent Project Muscular Dystrophy
Platelet Disorder Support Association
Positive Exposure Productions
Prader-Willi Syndrome Association (USA)
Praxis Project
Progeria Research Foundation
Prostate Cancer International
Pull-thru Network, Inc.
PXE International
Research Advocacy Network
Rett Syndrome Research Trust
Scleroderma Foundation
Shwachman Diamond Syndrome Foundation
Southwestern Oklahoma State University
Stennis Foundation
Strategic Health Policy International
Sudden Arrhythmia Death Syndromes Foundation
Syndromes Without A Name USA
Technic Solutions, LLC
Thalassaemia Society of Pakistan
Tuberous Sclerosis Alliance
United Mitochondrial Disease Foundation
Vasculitis Foundation
Wilson Disease Association
XLH Network, Inc.


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