The final access principles identified and reviewed by the meeting participants follow:
Create universal access to optimal care that provides an established benefit to individuals, families and communities.
Access must be viewed from multiple angles—including (but not limited to) language, location, culture, type of disease, literacy, complexity of decision‐making, and finances—all of which contribute to the provision of optimal care. Optimal is defined as appropriate, efficient, and timely care based upon personal and familial medical history and genetic information. Care should include prevention, diagnosis, and treatments that balance quality of life and medical benefit. We must not only give access, but also help individuals understand their access.
To achieve optimal care, we must:
- Create a flexible system of evidence‐based medicine that allows for innovation in the evidentiary standards that define benefit
- Ensure that all individuals have a role in their clinical decision‐making
- Make credible, culturally appropriate, information freely available to patients and providers on evidence around treatments, treatment options, support, resources, and options for delivery of services
- Help patients and providers use this information to make informed decisions about appropriate care, course of treatment, and health decision‐making
- Provide tools and resources to help all stakeholders navigate the medical system and understand health information with the goal of creating an intuitive system that eliminates the need for such tools
- Ensure health literacy is an integral part of the educational system
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