Discussing Next Steps

Based on the principles identified in the group discussions. We're going to identify next steps following this meeting and themes throughout the small group principles.

What themes do you see in the small group principles identified in the posts below?

Patient Empowerment Discussion Principles

The patient empowerment discussion landed at the following principles:

• Health and wellness
• Self-care
• Having the appropriate policies in place to empower and inform patients
• Train patients and their staff on the importance of healthcare and outcomes
• Our immediate networks are important
• Team-based approach to health and empowerment
• Train and empower patients to be involved on the research end
• Education should be a part of every stage of the healthcare system and in our daily lives
• As the health reform conversation continues more focus on personalized medicine can inform health outcomes
• De-stigmatize
• Incentivize physicians

What are your thoughts on these principles?

Access Discussion Principles

The access team identified the following principles:

• Universal access to optimal care
• Personalized medicine
• Informed decision about appropriate care included in health decision making and for help in informing patients on lifestyle choices
• Education materials following the tenants of good health communication
• Patients and providers should have research imfortmation readily available
• Not just as access but healping people learn how to next step beyond having access
• Affordable bio-generic drugs
• Health education
• Health-literacy
• People taught how to navigate health system

What would you like to add to this disussion?

Delivery Systems Discussion Principles

The delivery systesm team identified the following:

• Meeting half way to coordinate what are appropriate measures for accountability and how that will be implemented
• Coordinating care
• Support policies that facilitate portability that works together with information systems and the standards for those systems
• HIT must not just shift the venue, but improve access to information, while balancing self-selected privacy
• Eliminate community rating in insurance principles
• What are the incentives toward wellness and how can we encourage that
• How can we incentivize providers staying updated on research and treatment
• Centralized consumer feedback portal on providers
• Standardize provider-payer process

What is missing here?

Research Discussion Principles

The research team summarized the following principles from their discussion:

• Long-term investment in research
• Comparative effectiveness as a tool for personalized medicine
• Develop guidelines that foster public-private partnerships
• Provide incentives for the private sector to get involved in research
• Have an expansive view of the healthcare systems (including HIT, clinical trials, treatment development, etc.)
• The importance of studying the impact of healthy lifestyles and their impact on health outcomes
• Risk-taking research
• HIPPA as it relates to the stimulus package
• Privacy
• Patient access to compassionate use

What else would you like to add to the discussion?

Economic Discussion Principles

This is the summary of the economic discussion principles:

• Aligning incentives in the health care system to benefit the patient
• Coordination of system and HIT
• Fueling innovation
• Who pays for health reform vs. who is able to reap the benefit
• Covering everyone with minimal standard
• Overcoming vested (sometimes private org.) interest for public good
• Understanding how public-private investments
• How can industry organizations balance the investment vs. return, business
  model, with attaining the maximum benefit for patients
• Accepting personal responsibility requires understanding the system

We wanted to get more into employer-based coverage and mobile coverage as a means for improving access.

What would you like to add to these principles?

Summaries of Group Discussion Principles

The next posts will give a top-line summary of the principles that each of our small group discussions on:

Economics
Research-to-care Continuum
Access
Delivery Systems
Patient empowerment

What do you think about the principles brought up

Break 2

Taking another short 5 minute break. Come back for summaries of the principles each smalll group has identified. Your comments are being shared live at the meeting.

Research-to-care continuum: Small Group Discussion Post 4

Here is our summary of themes!!!
1. CER will foster personalized medicine, they are not at opposite ends of spectrum
2. Continual need to look at privacy, but not be a barrier
3. Health IT – embed in system to enable research among other reasons!
4. Funding for Research
5. Developing Public-Priavte Partnerships – guidelines and incentives needed
6. QOL vs. extension of life
7. Prevention research, including nutrition and lifestyle
8. Research on failed research
9. Access to clinical trials
10. Long-term investment in research to save money and stimulate economy
11. Evidentiary standards in clinical reserach

Access: Small Group Discussion Post 2

Defining access to healthcare

We determined that what we REALLY mean when we say “access to healthcare” is that we want access to optimal care—optimal care being care that is beneficial to the individual, both in terms of medical and quality of life benefits. We struggled in pulling apart the balance between relying upon proven methods or evidence-based medicine and facilitating and driving innovation. That balance is crucial. We must move beyond saying everyone should be "covered" to ensuring that the coverage gives them access to optimal care.

How did we do?